Survey: Breast Cancer Risk, Screening, and Trust in Care in the Black Community

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Word In Black
Word In Black
The Word In Black Racial Equity Fund, a component fund of Local Media Foundation, supports the work of Black-owned and operated local news media by providing critical journalism resources for Word In Black, a collaborative effort of 10 legendary Black publishers. Soon after the murder of George Floyd in 2020, Local Media Foundation established the Fund, originally called the Fund for Black Journalism. In the months after launch, donations to the Fund provided resources for LMF and 10 of the nation’s leading Black-owned local news organizations — AFRO News, The Atlanta Voice, Dallas Weekly, Houston Defender, Michigan Chronicle, New York Amsterdam News, Sacramento Observer, Seattle Medium, St. Louis American, and Washington Informer — to establish Word In Black. Word In Black is a digital startup unlike any other in the news media industry. It is the only national brand backed by legacy Black-owned news publishers, with strong histories and deep trust in their communities. Word In Black started small, with limited funding, and has grown quickly over the past few years. The Word In Black Racial Equity Fund supports journalism projects focused on solutions to racial inequities. Funding generally supports journalists who work for Word In Black, as well as journalists working for the 10 publishers. The Fund currently covers costs of 10 Word In Black journalists: an education reporter, education data journalist, health reporter, health data journalist, newsletter editor, climate justice reporter, community and audience engagement manager, finance reporter, religion reporter and the managing editor. The 10 publishers work with the WIB team to localize the stories in their markets, as well as producing their own original reporting.

by Christa Mahlobo

CONSENT

Word In Black, a national newsroom and research group dedicated to informing and empowering the Black community, invites you to participate in a brief online survey designed to better understand community views on Breast Cancer. If you agree to take part, you will complete a 5-minute anonymous survey. Participation is entirely voluntary, and you may skip any question that is not marked as required or stop the survey at any time without penalty.

To make sure our results represent the community accurately, we ask a few basic questions about age, location, and race/ethnicity. There are no direct benefits or risks beyond possible emotional discomfort when reflecting on personal topics.

Your responses are confidential and stored on secure, password-protected servers. Contact information for incentives is kept separate from survey data. 

You must be 18 or older to participate.
By selecting “I consent,” you confirm that you have read this information and agree to take part.

Questions? Email research@wordinblack.com

  • I consent to participate
  • I do not consent to participate

Section:

If they do not consent message:

Thank you for considering the study. Because you did not consent to be part of the study, you have been exited from the survey and can now close this tab.

QUALIFYING QUESTIONS

1. What is your race? *
(Select the option that best describes you.)
Question Type: Multiple Choice (Single-select)

  • Black or African American
  • White or Caucasian (screen out)
  • Asian (screen out)
  • Native Hawaiian or Other Pacific Islander (screen out)
  • Indigenous / Native American or Alaska Native (screen out)
  • Multiracial, including Black or African American
  • Multiracial, not including Black or African American (screen out)
  • Another race (please specify): ___________ 
  • Prefer not to say (screen out)

2. How old are you?*
Question Type: Multiple Choice — Single Select

  • Under 18 (screen out)
  • 18–24
  • 25–39
  • 40–49
  • 50–59
  • 60 or older

3. What is your gender?*

Question Type: Multiple Choice — Single-Select

  • Woman
  • Man
  • Transgender female
  • Transgender male
  • Prefer to self-describe: __________
  • Prefer not to say (screen out)

4. In which state do you currently reside? 

*Dropdown list of all 50 states, D.C., and Puerto Rico

Screening logic: If they don’t select Black or African American or Multiracial, including Black or African American, write in 18+, or select that their gender is female or Transgender male→ [Add “Go to section: Disqualification message”]

Section: Disqualification Message

Thank you for your interest. This survey is currently focused on the experiences of Black Women ages 18 and older. We appreciate your willingness to participate.

RISK AWARENESS AND RISK PERCEPTIONS 

1. Have you or someone close to you ever been diagnosed with breast cancer?

Yes, I have had breast cancer

Yes, someone close to me has had breast cancer

No

Prefer not to say

2. Has a healthcare provider ever talked to you about getting a mammogram? 

(Yes/No/I don’t remember)

3. Has a healthcare provider ever talked to you about genetic counseling or testing for inherited breast cancer risk (such as BRCA1 or BRCA2)?

(Yes/No/I don’t remember)

4. How often do you find yourself thinking about the possibility of developing breast cancer?

1 – Never

2 – Rarely

3 – Sometimes

4 – Often

5 – Almost all the time

5. I feel confident that I have enough knowledge to take actions to support my breast health and reduce risk.

1 – Strongly disagree

2 – Disagree

3 – Neither agree nor disagree

4 – Agree

5 – Strongly agree

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